A bit of a mixed update

I don't normally post in the daytime on weekends but I'm writting this to avoid having a meltdown. Not over any of the usual things, because I've been sat on the floor for 15minutes wrestling a draw back into its shelf and I've decided it's now just going to live on the floor. It also turns out that my blog gets more hits on a Saturday. The most I've had now is 600. More and more of you are becoming nosey and my sad little DIPG community is ever expanding! I've now been in contact with 5 people my own age. It's amazing to think that just a couple of months ago I thought it would be impossible to find 1!

I'll start with my medical update. Some of you may have noticed that I had a minor op on my toe recently, that's not a big issue, it's been an on growing problem for 7 years and that was probably my twenty something operation! But it worked and I'm no longer hopping. The problem was made worse just because of all the steroids I have been on. I'm still not off the hydrocortisone as I'm waiting to have that steroid production test. I Cant tell you much about that because I'm clueless myself. I did go for my eye test on Wednesday. That was interesting as it turns out I have quite above average vision. My double vision to the left is caused by an 8% muscle limitation in my left eye. In non medical terms this is because Brians fat arse is sat on the nerve that controls this. My center alignment is very slightly out as my right eye is trying to overcompensate for this. Because my eyesight is so good, the eye tests will only be used as a way of tracking progression to save all the MRIs. I'll go every couple of months to have the perception of each eye mapped out, if the maps change its an indicator of change which means I can be rushed for further testing. I'm still not eati ng a great deal, my GP reckons I'm producing too much stomach acid but I feel less sick. Im Starting acupuncture in December to help manage things like this. The plus side of all this is that I'm losing weight quite rapidly and I'm now back to a size 14 so I'm feeling more like myself!

I'm still going for psychology appointments at the QE. Most people go for about 6 sessions. Well I've already had six and she has me pencilled in until January so she must think I'm clearly quite interesting. Or messed up, whichever description takes your fancy. It's becoming less awkward but I still find it hard to start the conversations. Before I went yesterday, I met up with someone I feel incredibly comfortable with. This relationship is built on strong senses of humour which makes it incredibly easy to joke about all the more painful elements of my life. It's great because it means I can actually talk about them. I then ended up sat on the train in a trance like state just thinking about all the things said but in a different light. This made for a very deep and interesting psychology session! It just goes to prove how much easier life can be with a bit of laughter, even if at some points you have to take a moment to process the reality of the situation.

I'm off to Iceland on Wednesday! We are incredibly excited and I'm starting to think of it less as a 'bucket list' holiday and more of just a great experience with one of my favourite people in the world. (For now... We may hate each other by the end of the holiday!) we shall see! That's all I'm going to say for now. Weldone if you have managed to read to the end of my ramblings. As a reward for your efforts... Please comment or message me with an image/idea to take to my art class on Monday and I'll pick a couple and post you the result!