Sunday 24 July 2016

So I haven't posted in a while now, I have been focus in on recovering from the radiotherapy and doing my best with all the wedding plans. It still feels odd not going to hospital every day. The last treatment was quite odd. I was lying on the bed when the nurse leaned over and asked if I wanted to keep my radio therapy mask... I thought why not! There is now a plastic cast of my head living in my room. We are thinking of alternate uses for it. Best suggestion so far is to use me as a fruit bowl.... To be cherished forever I hope. I feel a lot better now, less tired. I still feel a bit battered as the steroids have had bad effects on my joints and my skin has gone super sensitive. Because of the sudden weight gain I have developed really bad stretch marks too. My hair has stopped falling out though, just two little bald patches above my neck. That's it about the radiotherapy really. If anyone is interested in learning anything about it please ask. I have just got back from a family holiday to Cornwall which was lovely any relaxing. I even went in the sea without a wetsuit! Only negative was burning so easy because of my sensitive skin. The best day by far was a wildlife trip brought by my parents for my birthday. We saw wild porpoise, seals and a large pod of common dolphin, it was incredible. One thing to tick off the bucket list!
Talking of bucket lists... Please comment some suggestions... I'm struggling for creative ideas! So what's next... I have an MRI at ridiculous o'clock in the morning on Wednesday. I then get the results in a review from my doctor the following Tuesday. I'm ridiculously nervous as that is when I'll find out how long they can keep me healthy for with the treatments available... Which is limited unless I can find a new trial of some kind. As always... Fingers crossed!

You will hear from me with an update soon! Please keep getting in touch and asking questions it's been lovely hearing from all of you. X