So hello, in this post I'm sure I am speaking to a larger audience as I am now heavily envolved with the wonderful charity of Abbie's army. The charity is formed in memory of a lovely little girl who lost her battle to DIPG at the age of six. It is ran and managed by her mother Amanda who I have been speaking to a fair amount over the past couple of months, she is an amazing lady. Have a look at her charity page if you get chance. It is one of the only charities in the uk to fund research into the specific type of cancer. As many of you may know, age six is one of the more common ages for DIPG to affect. For me to encounter the horrible disease at 20 is incredibly unusual, but then again I have never been one for normalities! I am going to start writting on a more regular basis with the same intentions of raising awareness. However I am now also writting to provide a new viewpoint for DIPG parents. As I am that much older I am better able to express my feelings and emotions through a greater understanding. I hope this can provide a certain level of comfort to all of you proud parents now reading my blog. As for the rest of you, I hope my ramblings continue to inform and entertain. I've had one of those days today. I met a cancer psychologist for the first time and had a pretty big cry. You know you have it pretty bad when you spot a tear in your psychologists eye! As helpful as it was to just talk, I'm feeling a bit emotional now. It was also a bit awkward at times as she would just look at me until I gave in to the silence and continued to babble on about my feelings. I guess that's what it's all about isn't it? I left the hospital and a nice lady pointed out I still had the tag on my jumper... Nice one! At lunch another nice lady pointed out that I had the tag on my shirt... Go me! I don't quite know how I manage these things. I've had a lot of old friends come back into my life recently which I have absolutely loved. It always amazes me how some people you can just click with and have a conversation as if you talk all the time, bearing in mind some of these people I haven't really seen in years! It's been hard watching all my friends return to uni without me, but sometimes it only takes a few kind words to turn my day around again. I'm lucky to have such lovely people around me. the smallest things can make such a difference. To all the DIPG parents, I'll put my email at the end of this post, please contact me if you have any questions or just want to get in touch. Speak to you all soon!
email: howellfr@gmail.com
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